Two families staying at The Children’s Inn at NIH in Bethesda have found comfort meeting others in the “rare disease community.” Lydia Mzame came to The Inn from Mombasa, Kenya to help her 13-year-old son who’s suffered from sickle cell disease since he was four months old. Mzame came with her husband and their two other children. […]
The children’s Inn at NIH
March 1, 2019 |
February 28, 2019 |
The Children’s Inn at NIH Celebrates Rare Disease Day
The Children’s Inn at NIH in Bethesda celebrated Rare Disease Day on Thursday. Because the holiday celebrates “rare” diseases, the holiday is ideally celebrated on the rarest day of the year, February 29. However, since this year wasn’t a leap year, it was celebrated on February 28. Stephanie Feinberg, the family program assistant at The […]
August 27, 2018 |
Donations Needed for Families Displaced at The Children’s Inn
Dozens of patients are out their homes following a structural crack in the roof of the Children’s Inn at NIH last week. The damage caused all 45 patients and their families staying at The Inn to evacuate the building and relocate to area hotels, according to officials. Since the incident, the E-wing with 23 resident […]
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