Two families staying at The Children’s Inn at NIH in Bethesda have found comfort meeting others in the “rare disease community.” Lydia Mzame came to The Inn from Mombasa, Kenya to help her 13-year-old son who’s suffered from sickle cell disease since he was four months old. Mzame came with her husband and their two other children. […]
rare disease day
March 1, 2019 |
February 28, 2019 |
The Children’s Inn at NIH Celebrates Rare Disease Day
The Children’s Inn at NIH in Bethesda celebrated Rare Disease Day on Thursday. Because the holiday celebrates “rare” diseases, the holiday is ideally celebrated on the rarest day of the year, February 29. However, since this year wasn’t a leap year, it was celebrated on February 28. Stephanie Feinberg, the family program assistant at The […]
February 26, 2017 |
Rare Disease Day to Focus on Research at NIH on Feb. 27 in Bethesda
Did you know that an estimated 25 million Americans are affected by a rare disease? On Feb. 27, the National Institutes of Health (NIH) in Bethesda will host Rare Disease Day to raise awareness about rare diseases, the people they affect, and research collaborations that are making a difference. This year’s global theme is research. […]
Engage us on Facebook
Follow us on Twitter
Tweets by @mymcmedia