My New Normal
Suzanne Tobin is a former copy editor and designer for The Washington Post. At 59, in great health and working full-time as a copy editor for AARP, Suzanne was planning a trip to London to celebrate her 60th birthday, when everything changed. She experienced a series of seemingly unrelated health complications that took her from able-bodied to wheelchair-bound in five months.
Four years removed from her life-threatening nightmare, which was featured as The Washington Post’s “Medical Mystery” on April 21, 2015, she continues to pursue any therapy that offers some promise of improving the permanent damage to her brain.
There is still no proven treatment for either of the rare diseases that were diagnosed in her case: progressive multifocal leukoencephalopathy (PML) and idiopathic CD4 lymphocytopenia (ICL). By participating in two NIH “natural history” research studies, one for each disease, she hopes to make a contribution to help find a cure for others.
To learn more about her journey of hope and resilience, follow her blog, ournewnormal.support, which she began as a way to reach out to other brain injury survivors and their caregivers.